For U.S. residents only.

Monitoring Disease

TSC-related kidney tumors

TSC AFFECTS EVERYONE DIFFERENTLY

TSC can vary widely from person to person

  • While some people develop just a few symptoms, others have many
  • While some people have mild symptoms, others have major ones

Different symptoms tend to appear at different stages of life. For example, TSC-related kidney tumors tend to occur between childhood and adulthood, but are rarely seen in infancy.

 

kidneys 

BECAUSE TSC IS A LIFELONG DISEASE, MONITORING YOUR TSC-RELATED KIDNEY TUMORS IS IMPORTANT

In 2012, an international committee of TSC experts provided guidelines on appropriate monitoring of organs that can be affected by TSC. These experts recommend that you:

WORK WITH A TEAM FOR OPTIMAL CARE

Because TSC affects multiple organs, it is important to have a team of specialists evaluating and monitoring your symptoms. You may need to see multiple specialists, depending on how TSC-related kidney tumors are affecting your body. 

doctors

 

 

See a nephrologist or urologist for your kidney tumors.

 

See the following specialists depending on your symptoms:

  • A neurologist for monitoring your central nervous system
  • A psychiatrist or psychologist to help with emotional issues
  • A primary care doctor
  • A geneticist, if you need or want genetic testing