For US residents only.

Monitoring Disease

TSC-associated kidney tumors

TSC AFFECTS EVERYONE DIFFERENTLY

TSC can vary widely from person to person

  • While some people develop just a few symptoms, others have many
  • While some people have mild symptoms, others have major ones

Different symptoms tend to appear at different stages of life. For example, TSC-associated kidney tumors tend to occur between childhood and adulthood.

 

kidneys 

BECAUSE TSC IS A LIFELONG DISEASE, MONITORING YOUR TSC-ASSOCIATED KIDNEY TUMORS IS IMPORTANT

An international committee of TSC experts has provided guidelines on appropriate monitoring of organs that can be affected by TSC. These experts recommend that you:

WORK WITH A TEAM FOR OPTIMAL CARE

Because TSC affects multiple organs, it is important to have a team of specialists evaluating and monitoring your symptoms. You may need to see multiple specialists, depending on how TSC-associated kidney tumors are affecting your body. 

doctors

 

 

See a nephrologist or urologist for your kidney tumors.

 

See the following specialists, depending on your symptoms:

  • A neurologist for monitoring your central nervous system
  • A psychiatrist or psychologist to help with emotional issues
  • A primary care doctor
  • A geneticist, if you need or want genetic testing